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Second Annual Aidan’s Ride Sturgis Set For 76th Anniversary Sturgis Motorcycle Rally 2016

Aidan Jack Seeger Foundation Charity Ride to Fight ALD Building on Initial
Success

aidan seeger
Brooklyn, New York (June 30, 2016) – The second annual Aidan’s Ride Sturgis,
a charity motorcycle ride organized to fight ALD, will take place August 8,
2016, during the 76th anniversary of the iconic Sturgis Motorcycle RallyR.
Last year, 75 riders participated, raising over $13,500 for the Aidan Jack
Seeger Foundation, and organizers expect an even bigger turnout this time
around.

“We were so happy with the response and support we received,” said Elisa
Seeger, Aidan’s mother and founder of the foundation. “This is another great
step in our journey and mission to educate people about ALD and hopefully
save families from enduring what ours did.”

Adrenoleukodystrophy (ALD) is an inherited x-linked genetic disease that
affects all neurological functions and reduces those afflicted with it to a
vegetative state that persists until death. Aidan Jack Seeger was just six
years old when he was diagnosed with ALD in 2011. He succumbed to the
disease in April of 2012. Had he been diagnosed at birth, he could have
undergone treatment that would have arrested the disease and allowed him to
live a full life.

Held to benefit the Aidan Jack Seeger Foundation, which was established in
Aidan’s honor, Aidan’s Ride Sturgis seeks to raise funds for the purpose of
helping families with children diagnosed with Adrenoleukodystrophy,
heightening awareness about ALD and pushing for legislation in every state
that mandates screening of newborns for the disease.

Currently, New York is the only one of the United States to screen for ALD,
thanks to Aidan’s Law, passed by the state legislature in the wake of
Aidan’s tragic and untimely death. As of June 15, 2016, 560,000 newborns
have been screened in New York and 46 babies have tested positive for the
disease. Thanks to early detection, these children are undergoing treatment
that will allow them to live full lives.

Register for the second annual Aidan’s Ride Sturgis that will be an early
morning 90-miles long ride that will start at Sturgis Guns (2324 Junction
Ave.), then wind through the Black Hills, stop in Hill City, SD, and end at
Woolly’s Grill and Cellar in Hot Springs, SD, where participants will
enjoyed a full catered brunch and receive a limited-edition pin and patch.

The ride is made possible by generous support from Metzeler Tires, Hot
Leathers and Indian Larry Motorcycles.

Link to registration : https://www.flipcause.com/widget/widget_home/OTAwNQ==
About Aidan’s Ride Sturgis
Held to benefit the Aidan Jack Seeger Foundation, which was established in
Aidan Seeger’s honor, Aidan’s Ride Sturgis seeks to raise funds for the
purpose of heightening awareness about Adrenoleukodystrophy (ALD), help
families with children diagnosed with ALD, and push for legislation in all
50 of the United States that mandates screening of newborns for the disease.
The second annual Aidan’s Ride Sturgis is set for August 8, 2016, during the
76th Anniversary Sturgis Motorcycle RallyR. The Aidan Jack Seeger Foundation
is a nonprofit 501(C) charity run completely by volunteers with every
donation directly benefiting their mission.

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